CHAPTER SIXTEEN / CHAPITRE SEIZE

 Slow as a Glacier, Equally Relentless: Patient-Centred Medicine

Lent comme un glacier, mais tout aussi implacable: la médecine centrée sur le patient

 

Topics in this page / Sujets ici

 

France et en français

 

Forces (see also / voir aussi ch. 11, 12, 15)

Race and Class / Race et classe sociale

Indigenous Peoples / Populations indigènes

Disability / Handicap

Sexuality / Sexualité

 

Responses / Réponses

Bioethics and Patient Activism / Bioéthique et activisme des patients

Palliative Care / Soins Palliatifs

Right to Die, Euthanasia / Droit de mourir, euthanasie

Education: Competencies, Narrative, Humanities / Education: Compétences, Narration, Humanités

 

Race and Class / Race et classe sociale

Anderson, Warwick, Deborah Jenson, and Richard C. Keller, eds. Unconscious Dominions: Psychoanalysis, Colonial Trauma, and Global Sovereignties. Durham, NC: Duke University Press, 2011.

Baker, Robert B., et al., eds. The American Medical Ethics Revolution: How the AMA's Code of Ethics Has Transformed Physicians' Relationships to Patients, Professionals, and Society. Baltimore: Johns Hopkins University Press, 1999.

Baker, Robert B. The American Medical Association and Race. AMA Journal of Ethics; Virtual Mentor 16.6 (2014): 479-88.

Baker, Robert B., et al. ‘African-American Physicians and Organized Medicine, 1846-1968: Origins of a Racial Divide.’ JAMA 300 (2008), 306-13.

Bhattacharya, Sudip. Unseen Enemy: The English, Disease, and Medicine in Colonial Bengal, 1617-1847. Newcastle upon Tyne: Cambridge Scholars Publishing, 2014.

Blackstock, Uché. Why black doctors like me are leaving faculty positions in academic medical centers, STAT, 16 January 2020.

Braun, Lundy. Breathing Race into the Machine: The Surprising Career of the Spirometer from Plantation to Genetics. Minneapolis: University of Minnesota Press, 2014.

Catherine Cox, and Hilary Marland, eds. Migration, Health and Ethnicity in the Modern World. New York: Palgrave Macmillan, 2013.

Chakrabarti, Pratik. Medicine and Empire, 1600-1960. Houndmills, Basingstoke, Hampshire: Palgrave Macmillan, 2014.

Chowkwanyun, Merlin, and Adolph L. Reed, jr. Racial Disparities and COVID-19. New England J of Medicine 383 (2020): 201-3.

Cleall, Esme. Missionary Discourses of Difference: Negotiating Otherness in the British Empire, 1840-1900. Palgrave Macmillan, 2012.

DeShazo, Richard D. The Racial Divide in American Medicine: Black Physicians and the Struggle for Justice in Health Care. Jackson: U Mississippi Press 2018.

Downs, Jim. Maladies of Empire: How Colonialism, Slavery and War Transformed Medicine. Harvard University Press, 2020.

Downs, Jim. Sick from Freedom: African-American Illness and Suffering during the Civil War and Reconstruction. Oxford U Press, 2014.

Dubinsky, Karen, Sean Mills and Scott Rutherford, eds. Canada and the Third World: Overlapping Histories. Toronto: University of Toronto Press, 2016.

Efron, John M. Medicine and the German Jews: A History. Yale UP, 2001.

Ernst, Waltraud, and Bernard Harris, eds. Race, Science and Medicine, 1700–1960. Routledge, New York, 1999.

Ernst, Waltraud, ed. Plural Medicine, Tradition and Modernity, 1800–2000. Routledge, London, 2002.

Ernst, Waltraud. Histories of the Normal and the Abnormal: Social and Cultural Histories of Norms and Normativity. Routledge, London, 2006. 

Fassin, Didier. When Bodies Remember: Experiences and Politics of AIDS in South Africa, trans. Amy Jacobs and Gabrielle Varro. Berkeley: University of California Press, 2007.

Fernando, Suman. Institutional Racism in Psychiatry and Clinical Psychology: Race Matters in Mental Health. Cham, Switzerland: Springer Berlin Heidelberg, 2017.

Flint, Karen E. Healing Traditions: African Medicine, Cultural Exchange, and Competition in South Africa, 1820-1948. Ohion University Press, 2008.

Gelfand, Toby. Charcot in Morocco. Ottawa: University of Ottawa Press, 2012.

Harrison, Mark. Medicine in an Age of Commerce and Empire: Britain and its Tropical Colonies, 1660-1830. Oxford: Oxford University Press, 2010.

Hoberman, John. Black and Blue: The Origins and Consequences of Medical Racism. Berkeley: University of California Press, 2012.

Hogarth, Rana A. Medicalizing Blackness: Making Racial Difference in the Atlantic world, 1780-1840. Chapel Hill, NC: The University of North Carolina Press, 2017.

Humphreys, Margaret. Intensely Human: The Health of the Black Soldier in the American Civil War. Baltimore: Johns Hopkins University Press, 2008.

Mawani, Renisa. Colonial Proximities: Crossracial Encounters and Juridical Truths in British Columbia, 1871-1921. Vancouver: UBC Press 2010.

Jordan, Diann. Sisters in Science: Conversations with Black Women Scientists about Race, Gender, and their Passion for Science. West Lafayette, Ind.: Purdue University Press, 2006.

Kaplan, Mary. The Tuskegee Veterans Hospital and its Black Physicians: The Early Years. Jefferson, NC: McFarland, 2016.

Klausen, Susanne M. Abortion Under Apartheid: Nationalism, Sexuality, and Women's Reproductive Rights in South Africa. Oxford University Press, 2015.

Krimsky, Sheldon, and Kathleen Sloan, eds. and the Genetic Revolution: Science, Myth, and Culture. New York: Columbia University Press, 2011.

Kunitz, Stephen J. Disease and Social Diversity: The European Impact on the Health of Non-Europeans. New York: Oxford University Press, 1994.

Mawani, Renisa. Across Oceans of Law: The Komagata Maru and Jurisdiction in the Time of Empire. Duke University Press, 2018.

Maynard, Robyn. Policing Black Lives: State Violence in Canada from Slavery to the Present. Fernwood, 2017.

McBride, David. Caring for Equality: A History of African American Health and Healthcare. Rowman and Littlefield, 2018.

McCandless, Peter. Slavery, Disease, and Suffering in the Southern Lowcountry. Cambridge: Cambridge University Press, 2011.

Navarro, Vincente. Class Struggle, the State, and Medicine: An Historical and Contemporary Analysis of the Medical Sector in Great Britain. Watson International, 1978.

Newby, Dalyce. Anderson Ruffin Abbott: First Afro-Canadian Doctor. Associated Medical Services, 1998.

Noble, Vanessa. Doctors Divided: Race, Gender, and Class Anomalies in the Production of Black Medical Doctors in Apartheid South Africa, 1948-1994. PhD thesis, University of Michigan, 2005.

Owens, Deirdre Cooper. Medical Bondage: Race, Gender, and the Origins of American Gynecology. U Georgia Press 2017.

Rankin, John. Healing the African body: British Medicine in West Africa, 1800-1860. Columbia: University of Missouri Press, 2015.

Reid, Richard M, ed. Practicing Medicine in a Black Regiment: The Civil War Diary of Burt G. Wilder, 55th Massachusetts. Amherst: University of Massachusetts Press, 2010.

Romain, Gemma. Race, Sexuality and Identity in Britain and Jamaica: The Biography of Patrick Nelson, 1916-1963. Bloomsbury Academic, 2019.

Savitt, Todd L. Medicine and Slavery: The Diseases and Health Care of Blacks in Antebellum Virginia. University of Illinois Press, 1981, 2002.

Savitt, Todd Lee. Race and Medicine in Nineteenth- and Early-Twentieth-Century America. Kent, Ohio: Kent State University Press, 2007.

Schiebinger, Londa L. Secret Cures of Slaves: People, Plants, and Medicine in the Eighteenth-Century Atlantic World. Stanford, California: Stanford University Press, 2017.

Sehrawat, Samiksha. Colonial Medical Care in North India: Gender, State, and Society, c. 1830-1920. New Delhi: Oxford University Press, 2013.

Sidhu, Jonathan. Exploring the AMA's History of Discrimination. ProPublica. 16 July 2008.

Snorton, C. Riley. Black on Both sides: A Racial History of Trans Identity. Minneapolis, MN: University of Minnesota Press, 2017.

Sokoloff, Natalie J. Black Women and White Women in the Professions: Occupational Segregation by Race and Gender, 1960-1980. London and New York: Routledge, 1992.

Summers, Martin. Madness in the City of Magnificent Intentions: A History of Race and Mental Illness in the Nation's Capital. New York: Oxford University Press; 2019.

Tuchman, Arleen Marcia. Diabetes: A History of Race and Disease, Yale University Press, 2020.

Wallace, Sarah Isabel. Not Fit to Stay: Public Health Panics and South Asian Exclusion. Vancouver: UBC Press, 2017.

Washington, Harriet A. Medical Apartheid: The Dark History of Medical Experimentation on Black Americans from Colonial Times to the Present. Doubleday, 2006; Anchor, 2008.

White, Deborah Gray, ed. Telling Histories: Black Women Historians in the Ivory Tower. Chapel Hill: University of North Carolina Press, 2008.

 

Indigenous People and Colonization / Populations indigènes

Plants and the Indigenous Peoples of North America: Proceedings of Botany 80 Symposium. Canadian Journal of Botany 59 (1981): 2189–325.

Allan, B., J. Smylie. First Peoples, Second Class Treatment: The Role of Racism in the Health and Well-being of Indigenous Peoples in Canada, Discussion Paper. Wellesley Institute (2015) https://www.wellesleyinstitute.com/wp-content/uploads/2015/02/Summary-First-Peoples-Second-Class-Treatment-Final.pdf.

Amster, Ellen J. Medicine and the SaintsScienceIslam, and the Colonial Encounter in Morocco1877-1956. Austin: University of Texas Press, 2013.

Burnett, Kristin. Taking Medicine: Women's Healing Work and Colonial Contact in Southern Alberta, Vancouver: UBC Press, 2011.

Canada. National Inquiry. Reclaiming Power and Place: Final Report of the Royal Commission into Missing and Murdered Indigenous Women and Girls, Gatineau, 3 June 2019.

Cook, Noble David, and W. George Lovell, eds.“Secret Judgments of God”: Old World Disease in Colonial Spanish America. Norman: University of Oklahoma Press, 1992, 2001.

Coppermine: Consequence of Contact with the Outside. Videofilm, based on research by Walter J. Vanast. Montreal: National Film Board of Canada, 1992.

Davis, Natalie Zemon. Physicians, Healers, and their Remedies in Colonial Suriname. Canadian Bulletin of Medical History 33.1 (2016): 1-34.

Decker, Jody. ‘Depopulation of the Northern Plains Natives.’ Social Science and Medicine 33 (1991): 381-93.

Decker, Jody. ‘The York Factory Medical Journals, 1846-52,’ Canadian Bulletin of Medical History, 14 (1997), 105-29.

Digby, Anne, Waltraud Ernst, and Projit B. Muhkarji, eds. Crossing Colonial Historiographies: Histories of Colonial and Indigenous Medicines in Transnational Perspective. Newcastle upon Tyne: Cambridge Scholars, 2010.

Drees, Laurie Meijer. Healing Histories: Stories from Canada's Indian Hospitals. U Alberta Press 2013.

Dubinsky, Karen, Sean Mills and Scott Rutherford, eds. Canada and the Third World: Overlapping Histories. Toronto: University of Toronto Press, 2016.

Fixico, Donald L. Call for Change: The Medicine Way of American Indian History, Ethos, and Reality. Lincoln, Nebraska: University of Nebraska Press, 2013.

Geddes, Gary. Medicine Unbundled: A Journey through the Minefields of Indigenous Health Care. Heritage House 2017.

Gilchrist, Kristen. “Newsworthy” Victims? Exploring Differences in Canadian Local Press Coverage of Missing/Murdered Aboriginal and White Women. Feminist Media Studies 10.4 2010.

Hamilton, Michelle A. Collections and Objections: Aboriginal Material Culture in Southern Ontario. Montreal: McGill-Queen's University Press, 2010.

Hogue, Michel. Metis and the Medicine Line: Creating a Border and Dividing a People. Regina, Saskatchewan: University of Regina Press, 2015.

Jamieson, Keith and Michelle A. Hamilton. Dr. Oronhyatekha: Security, Justice, and Equality. Hamilton, ON.: Dundurn Press, 2014.

Jones, David S. Rationalizing Epidemics: Meanings and Uses of American Indian Mortality since 1600. Cambridge, Mass.: Harvard University Press, 2004.

Keller, Jean A. Stature Analysis of Perris Indian School Students, 1894–99. Canadian Bulletin of Medical History 18.1 (2001): 109-40.

Kelm, Mary-Ellen. Colonizing Bodies: Aboriginal Health and Healing in British Columbia, 1900-50. Vancouver: University of British Columbia Press, 1998. See also her other publications at https://www.sfu.ca/history/faculty-and-staff/faculty-by-name/mary-ellen-kelm.html.

Kunitz, Stephen J. Disease and Social Diversity: The European Impact on the Health of Non-Europeans. New York: Oxford University Press, 1994

Lovell, W. George. In the Wake of Columbus: Amerindian Antecedents to COVID-19. Active History: History Matters, 23 June 2020. https://activehistory.ca/2020/06/in-the-wake-of-columbus-amerindian-antecedents-to-covid-19/.

Lux, Maureen K. Medicine That Walks: Medicine, Disease and Canadian Plains Native People, 1880-1940. Toronto: University of Toronto Press, 2001.

Lux, Maureen K. Separate Beds: A History of Indian Hospitals in Canada, 1920s-1980s. University of Toronto Press, 2016.

MacDonald, Noni E. Richard Stanwick, and Andrew Lynk. Canada’s shameful history of nutrition research on residential school children: The need for strong medical ethics in Aboriginal health research. Paediatr Child Health 19.2 (2014): 64.

MacDonald, Noni, Paul C. Hebert, and Matthew B. Stanbrook. Tuberculosis in Nunavut: A century of failure. CMAJ: 183.7 (2011): 741.

Mahoney, Jas. W. The Cherokee Physician: or, Indian Guide to Health, as Given by Richard Foreman, a Cherokee Doctor. DocSouth Books; University of North Carolina at Chapel Hill Library, 2018.

McCallum, Mary Jane Logan and Adele Perry. Structures of Indifference: An Indigenous Life and Death in a Canadian City. Winnipeg: University Manitoba Press, 2018.

McCallum, Mary Jane Logan. Indigenous Women, Work and History, 1940-1980. Winnipeg: University of Manitoba Press in 2014.

Méthot, Suzanne. Legacy: Trauma, Story, and Indigenous Healing. Toronto: ECW Press 2019.

Mosby, Ian. Administering colonial science: Nutrition research and human biomedical experimentation in Aboriginal communities and residential schools, 1942–1952. Social History 2013;46 (2013):145–72.

Newman, Carey, and Kirstie Hudson. Picking up the Pieces: Residential School Memories and the Making of the Witness Blanket. Victoria, BC: Orca Book Publishers; 2019.

Nicks, Trudy. Dr. Oronhyatekha's History Lessons: Reading Museum Collections as Texts. In Reading Beyond Words. Contexts for Native History, eds. Jennifer S.H. Brown and Elizabeth Vibert. Peterborough: Broadview Press, 2003, 459-489.

Shaheen-Hussain, Samir. Fighting for a Hand to Hold: Confronting Medical Colonialism against Indigenous Children in Canada. Montreal: McGill Queen’s University Press, 2020.

Sherwin, Allan. Bridging Two Peoples Chief Peter E. Jones, 1843–1909. Waterloo: Wilfred Laurier University Press, 2012.

Smith, F. B. Illness in Colonial Australia. Melbourne: Australian Scholarly Pub., 2011.

Starita, Joe. A Warrior of the People: How Susan La Flesche Overcame Racial and Gender Inequality to Become America's First Indian Doctor. New York: St. Martin's Press, 2016.

Stote, Karen. An Act of Genocide, Colonialism and the Sterilization of Aboriginal Women. Halifax: Fernwood, 2015.

Tong, Benson. Susan LaFlesche Picotte, M.D.: Omaha Indian Leader and Reformer. Norman, OK: University of Oklahoma Press, 1999.

Waldock, ThomasRobert Brian Howe, Katherine Covell, eds. A Question of Commitment: The Status of Children in Canada. Waterloo, ON.: Wilfrid Laurier University Press, 2020 [p. 223 - 237 on Makayla Sault).

Waldram, James B., D. Ann Herring, and T. Kue Young. Aboriginal Health in Canada: Historical, Cultural, and Epidemiological Perspectives. Toronto: University of Toronto Press, 1995, esp. 97–121.

 

Disability / Handicap

Allan, Kathryn, ED. Disability in Science Fiction: Representations of Technology as Cure. New York: Palgrave Macmillan, 2013.

Anderson, Julie. War, Disability and Rehabilitation in Britain: "Soul of a Nation.” Manchester University Press, 2011.

Bates, Alan W. Emblematic Monsters: Unnatural Conceptions and Deformed Births in Early Modern Europe. Rodopi, 2005.

Bogdan, Robert, Martin Elks, and James A. Knoll. Picturing Disability: Beggar, Freak, Citizen, and Other Photographic Rhetoric. Syracuse, N.Y.: Syracuse University Press, 2012.

Burch, Susan and Michael Rembis, eds. Disability Histories. University of Illinois Press, 2014.

Burghardt, Madeline C. Broken: Institutions, Families, and the Construction of Intellectual Disability. Montreal: McGill Queen’s University Press, 2018.

Dale, Pamela and Joseph Melling, eds. Mental Illness and Learning Disability since 1850: Finding a Place for Mental Disorder in the United Kingdom. Routledge, 2006.

Davis, Audrey B. Triumph over Disability: The Development of Rehabilitation Medicine in the U.S.A. National Museum of History and Technology, 1973.

Edwards, Laurie. In the Kingdom of the Sick: A Social History of Chronic Illness in America. Walker & Co., 2013.

Enns, Ruth. A Voice Unheard: The Latimer Case and People with Disabilities. Brunswick Books, 2000.

Esmail, Jennifer. Reading Victorian Deafness: Signs and Sounds in Victorian Literature and Culture. Athens: Ohio University Press, 2013.

Estreich, George. The Shape of the Eye: Down Syndrome, Family, and the Stories We Inherit. Southern Methodist University Press, 2011.

Foss, Chris, Jonathan W. Gray, and Zach Whalen, eds. Disability in Comic Books and Graphic Narratives. Houndmills, Basingstoke, Hampshire; New York: Palgrave Macmillan, 2016.

Ghadessi, Touba. Portraits of Human Monsters in the Renaissance: Dwarves, Hirsutes, and Castrati as Idealized Anatomical Anomalies, Medieval Institute Publications, 2018.

Grenier, Stéphane, and Adam Montgomery. After the War: Surviving PTSD and Changing Mental Health Culture. U Regina Press 2018.

Heumann, Judith, and Kristen Joiner. Being Heumann: An Unrepentant Memoir of a Disability Rights Activist. Boston: Beacon Press, 2020.

Hobgood, Allison P. and David Houston Wood, eds. Recovering Disability in Early Modern England. Ohio State University Press, 2013.

Jackson, Mark. The Borderland of Imbecility: Medicine, Society, and the Fabrication of the Feeble Mind in late Victorian and Edwardian England. Manchester; New York: Manchester University Press, 2000.

King, Helen, ed. Health in Antiquity. Routledge, 2005.

Knoppers, Laura Lunger, and Joan B. Landes, eds. Monstrous Bodies/Political Monstrosities in Early Modern Europe. Ithaca: Cornell University Press, 2004.

Krötzl, Christian, Katariina Mustakallio, and Jenni Kuuliala, eds. Infirmity in Antiquity and the Middle Ages: Social and Cultural Approaches to Health, Weakness and Care. Ashgate Publishing Limited, 2015.

Laes, Christian, C.F. Goodey, and M. Lynn Rose. Disabilities in Roman Antiquity: Disparate Bodies, a capite ad calcem. Leiden: Brill, 2013.

Lella, Joseph et al. The Perils of Patient Government: Professionals and Patients ina Chronic Care Hospital. Waterloo, ON.: Wilfrid Laurier Press, 1988.

Longmore, Paul K., and Lauri Umansky, eds. The New Disability History: American Perspectives. New York University Press, 2001.

Maxwell, Anne Picture Imperfect: Photography and Eugenics 1870-1940. Brighton: Sussex Academic Press, 2008.

Miller, Brian Craig. Empty Sleeves: Amputation in the Civil War South. University of Georgia Press, 2015.

Montgomery, Adam. Invisible Injured: Psychological Trauma in the Canadian Military from the First World War to Afghanistan. Montreal: McGill Queen’s U Press, 2017.

Peterson, Dale, ed. A Mad People’s History of Madness. University of Pittsburgh Press, 1982.

Spinks, Jennifer. Monstrous Births and Visual Culture in Sixteenth-Century Germany. Pickering & Chatto, 2009.

Stiker, Henri-Jacques. A History of Disability. trans William Sayers University of Michigan Press, 1st ed, 1999; 2nd 2019.

Trent, James W. Inventing the Feeble Mind: A History of Mental Retardation in the United States. University of California Press, 1994.

Turner, David M., and Kevin Stagg, eds. Social Histories of Disability and Deformity. Routledge, 2006.

Verville, Richard. War, Politics, and Philanthropy: The History of Rehabilitation Medicine. University Press of America, 2009.

Virdi, Jaipreet. Hearing Happiness: Deafness Cures in History. University of Chicago Press, 2020.

Wes, Williams. Monsters and their Meanings in Early Modern Culture: Mighty Magic. Oxford University Press, 2011.

Wright, David, and Anne Digby, eds. From Idiocy to Mental Deficiency: Historical Perspectives on People with Learning Disabilities. Routledge, 1996.

 

Sexuality / Sexualité

Giffney, Noreen, Michelle M. Sauer, and Diane Watt, eds. The Lesbian Premodern. New York: Palgrave Macmillan, 2011.

Jackson, Julian. Living in Arcadia: Homosexuality, Politics, and Morality in France from the Liberation to AIDS. Chicago; London: University of Chicago Press, 2009.

Nardizzi, Vin, Stephen Guy-Bray, Will Stockton, eds. Queer Renaissance Historiography: Backward Gaze. Farnham: Ashgate, 2009.

Reis, Elizabeth, Bodies in Doubt: An American History of Intersex. Baltimore: Johns Hopkins University Press, 2009.

Segal, Marcia Texler, and Vasilikie Demos, eds. Advancing Gender Research from the Nineteenth to the Twenty-first Centuries. Bingley, UK: Emerald Jai, 2008.

Stryker, Susan. Transgender History. Berkeley, CA: Seal Press, 2008.

Traub, Valerie. Thinking Sex with the Early Moderns. Philadelphia: University of Pennsylvania Press, 2016.

Warsh, Cheryl Krasnick. Prescribed Norms: Women and Health in Canada and the United States since 1800. Toronto: University of Toronto Press, 2010.

Zhang, Everett Yuehong. The Impotence Epidemic: Men's Medicine and Sexual Desire in Contemporary China. Duke University Press, 2015.

 

Bioethics and Patient Activism / Bioéthique et activisme des patients

Annas, George J. The Rights of Patients: The Basic ACLU Guide to Patient Rights. 1st ed. 1975. Humana, 2012.

Baker, Robert B. and Laurence B. McCulloch, Cambridge World History of Medical Ethics Cambridge: Cambridge University Press, 2009.

Belkin, G S. ‘History and Bioethics: The Uses of Thomas Percival.’ Medical Humanities Review 12 (1998), 39-59.

Brody, Baruch A. The Ethics of Biomedical Research: An International Perspective. New York: Oxford University Press, 1998.

Cohen, Glenn. Patients with Passports: Medical Tourism, Law and Ethics. New York, NY: Oxford University Press, 2015.

Cooter, Roger. The Resistible Rise of Medical Ethics. Social History of Medicine 8.2 (1995): 257-70.

Davies, Megan J. and Rachel Barkin, eds. Voices from Hornby and Denman Island Home Support. Hornby and Denman Community Health Care Society, 2019.

Davies, Megan J. Into the House of Old: A History of Residential Care in British Columbia Montreal: McGill Queen’s University Press, 2003.

Davis, Lennard J. The End of Normal: Identity in a Biocultural Era. Ann Arbor: University of Michigan Press, 2013.

Diedrich, Lisa. Indirect Action: Schizophrenia, Epilepsy, AIDS, and the Course of Health Activism. Minneapolis: University of Minnesota Press, 2016.

Diedrich, Lisa. Indirect Action: Schizophrenia, Epilepsy, AIDS, and the Course of Health Activism. Minneapolis: University of Minnesota Press, 2016.

Dyck, Erika, and Maureen Lux. Challenging Choices: Canada's Population Control in the 1970s. Montreal: McGill Queen’s University Press, 2020.

Emerson, Roger L. Essays on David Hume, Medical Men and the Scottish Enlightenment: Industry, Knowledge and Humanity. Farnham; Burlington, VT: Ashgate, 2009.

Haakonssen, Lisbeth. Medicine and Morals in the Enlightenment: John Gregory, Thomas Percival, and Benjamin Rush. Clio Medica, Vol. 44. Amsterdam: Rodopi, 1997.

Jackson, Stanley W., ed. ‘The Hippocratic Oath.’ Journal of the History of Medicine and Allied Sciences special issue, 51.4 (1996), 403–500.

Jonsen, Albert R. A Short History of Medical Ethics. New York: Oxford University Press, 2000.

King, Samantha. Pink Ribbons, Inc.: Breast Cancer and the Politics of Philanthropy. University of Minnesota Press, 2008.

McVaugh, Michael R. Bedside Manners in the Middle Ages. Bulletin of the History of Medicine 71 (1997), 201-23.

McVaugh, Michael R. Medicine before the Plague: Practitioners and Their Patients in the Crown of Aragon, 1285–1345. Cambridge: Cambridge University Press, 1993.

Mol, Annemarie. The Logic of Care: Health and the Problem of Patient Choice. London; New York: Routledge, 2008.

Mold, Alex. Making the Patient-Consumer: Patient Organisations and Health Consumerism in Britain. Manchester U Press, 2015.

Mold, Alex. Patients´ Rights and the National Health Service in Britain, 1960s–1980s. Am J Public Health 102.11 (2012)): 2030–38.

Mold, Alex. Repositioning the Patient: Patient Organizations, Consumerism, and Autonomy in Britain during the 1960s and 1970s. Bulletin of the History of Medicine 87.2 (2013): 225-49.

Rees, Geoffrey. ‘Mortal Exposure: On the Goodness of Writing Medical Ethics.’ Perspectives in Biology and Medicine 51 (2008), 163-75.

Reinarz, Jonathan, and Rebecca Wynter, eds. Complaints, Controversies and Grievances in Medicine: Historical and Social Science Perspectives. London; New York: Routledge, Taylor & Francis Group, 2015.

Rothman, David J. Strangers at the Bedside: A History of How Law and Bioethics Transformed Medical Decision Making. 2nd ed. New Brunswick [N.J.]: AldineTransaction, 2008.

Schleiner, Winfried Medical Ethics in the Renaissance. Washington, D.C.: Georgetown University Press, 1995.

Stevens, M. L. Tina. Bioethics in America: Origins and Cultural Politics. Baltimore: Johns Hopkins University Press, 2000.

Veatch, Robert M. Disrupted Dialogue: Medical Ethics and the Collapse of Physician-Humanist Communication (1770-1980). Oxford; New York: Oxford University Press, 2005.

 

Palliative Care / Soins palliatifs

Duffin, Jacalyn. Palliative Care: The Oldest Profession?” Canadian Bulletin of Medical History 31.2 (2014): 205-28.

Have, H. ten, and David Clark. The Ethics of Palliative Care: European Perspectives. Buckingham; Philadelphia: Open University Press, 2002.

Saunders, Cicely. ‘The Evolution of Palliative Care.’ Journal of the Royal Society of Medicine 94 (2001), 430-32.

 

Right to Die, Euthanasia / Droit de mourir, euthanasie

Abel, Emily K. Living in Death's Shadow: Family Experiences of Terminal Care and Irreplaceable Loss. Baltimore; Johns Hopkins University Press, 2017.

Abel, Emily K. The Inevitable Hour: A History of Caring for Dying Patients in America. Baltimore: Johns Hopkins University Press, 2013.

Ball, Howard. At Liberty to Die: The Battle for Death with Dignity in America. NYU Press, . 2012.

Bishop, Jeffrey P. Anticipatory Corpse, The: Medicine, Power, and the Care of the Dying. U Notre Dame Press, 2011.

Cholbi, Michael, ed. Euthanasia and Assisted Suicide: Global Views on Choosing to End Life. Praeger 2017.

Dowbiggin, Ian Robert. A Merciful End: The Euthanasia Movement in Modern America. New York, N.Y.: Oxford University Press, 2003.

Dowbiggin, Ian. A Concise History of Euthanasia: Life, Death, God and Medicine. Rowman & Littlefield Publishers, 2005.

Kaufman, Sharon R. Ordinary Medicine: Extraordinary Treatments, Longer Lives, and Where to Draw the Line. Duke University Press, 2015.

Martin, Sandra. A Good Death: Making the Most of Our Final Choices, HarperCollins, 2016.

Minois, Georges, and Lydia G Cochrane. History of Suicide: Voluntary Death in Western Culture. Baltimore: Johns Hopkins University Press, 2001.

Nuland, Sherwin B. How We Die: Reflections on Life’s Final Chapter. Vintage, 1995.

Palladino, Paolo. Biopolitics and the Philosophy of Death. Bloomsbury Academic, 2016.

Robb, Nancy. Death in a Halifax hospital: A murder case highlights a profession's divisions. CMAJ 157 (1997): 757-62.

Weaver, John, and David Wright, eds, Histories of Suicide: International Perspectives on Self-Destruction in the Modern World. University of Toronto Press, 2008.

 

Educational Responses: Competencies, Narrative, Humanities

AIDS Activist History Project. https://aidsactivisthistory.ca

Barnett, Richard. The Sick Rose, or, Disease and the Art of Medical Illustration. New York, NY: D.A.P./Distributed Art Publishers, Inc., 2014.

Bates, Victoria, Alan Bleakley and Sam Goodman, eds. Medicine, Health and the Arts: Approaches to the Medical Humanities. Abingdon, Oxon: Routledge, 2014.

Bernard, N. The Novel and Nursing History: A Consideration of Potential Sources. International History of Nursing Journal 4 (1999), 26-32.

Cairns, Francis, Miriam Griffin, Sandra Cairns, and Frederick Williams, eds. Health and Sickness in Ancient Rome: Greek and Roman Poetry and Historiography. Cambridge: Francis Cairns, 2010.

Cervetti, Nancy. S. Weir Mitchell, 1829-1914: Philadelphia’s Literary Physician. University Park, Pa.: Pennsylvania State University Press, 2012.

Charon, Rita. Narrative Medicine: Honoring the Stories of Illness. New York: Oxford University Press, 2006.

Cousins, Norman. Anatomy of an Illness as Perceived by the Patient. New York: Norton, 1979.

Czerwiec, Mary Kay, Ian Williams, Susan Merrill Squier, Michael J. Green, Kimberly R. Myers, and Scott T. Smith. Graphic Medicine Manifesto. Pennsylvania State University Press, 2015.

DasGupta, Sayantani. Reading Bodies, Writing Bodies: Self-Reflection and Cultural Criticism in a Narrative Medicine Curriculum. Literature and Medicine 22.2 (2003), 241-56.

Dorsey, J. Kevin, P. K. Rangachari, and Howard S. Barrows, eds. Students Matter: The Rewards of University Teaching, Springfield, Ill: Southern Illinois University School of Medicine, 2012.

Duffin, Jacalyn. Infiltrating the Curriculum: An Integrative Approach to History for Medical Students. Journal of the Medical Humanities, 16.3 (1995): 155-174.

Duffin, Jacalyn. Infiltrating the Curriculum: Triumphs and Disasters in Bringing History to Future Doctors. In Students Matter: The Rewards of University Teaching, eds. J. Kevin Dorsey and P. K. Rangachari. Springfield, Ill: Southern Illinois University School of Medicine, 2013. pp. 74-92. Translated into Japanese 2014.

Foss, Chris, Jonathan W. Gray, and Zach Whalen, eds. Disability in Comic Books and Graphic Narratives. Houndmills, Basingstoke, Hampshire; New York, NY: Palgrave Macmillan, 2016.

Frank, Jason R. ed. The CanMEDS 2005 Physician Competency Framework. Better Standards. Better Physicians. Better care. Ottawa: RCPSC, 2005.

Hardiman, David, and Projit Mukherjee, eds. Medical Marginality in South Asia: Situating Subaltern Therapeutics, Abingdon: Routledge, 2012.

Heffron, J.L., D. Lee, L. VanPuymbrouck, A.J. Sheth, and J. Kish. The Bigger Picture: Occupational Therapy Practitioners' Perspectives on Disability Studies. American Journal of Occupational Therapy 73.2 (2019):7302205100p1-7302205100p10.

Hodges, Brian D., Gail Paech, and Jennifer Bennett, eds. Without Compassion, There Is No Healthcare: Leading with Care in a Technological Age. Montreal: McGill Queen’s U Press, 2020.

Huisman, Frank, and John Harley Warner, eds. Locating Medical History: The Stories and their Meanings, Baltimore: Johns Hopkins University Press, 2004.

Ioerger, M., R.M. Flanders, J.R. French-Lawyer, and M.A. Turk. Interventions to Teach Medical Students About Disability: A Systematic Search and Review. American Journal of Physical Medicine & Rehabilitation 98.7 (2019): 577-99.

Jones, David S., Jeremy A. Greene, Jacalyn Duffin, and John Harley Warner. Making the Case for History in Medical Education. J History of Medicine and Allied Sciences 70.2 (2014): 165-94.

Jones, E.M., Tansey, E.M. (eds). The Development of Narrative Practices in Medicine c.1960–c.2000. Welcome Witnesses to Contemporary Medicine, vol. 52 (2015). London: Queen Mary University of London.

Leibowitz, Herbert A. "Something Urgent I Have To Say To You": The Life and Works of William Carlos Williams. Farrar, Straus and Giroux, 2011.

Lewis, Bradley. Narrative Psychiatry: How Stories Can Shape Clinical Practice. Baltimore: Johns Hopkins University Press, 2011.

Lovett, Lisetta, and Alannah Tomkins. Medical History Education for Health Practitioners. London: Radcliffe Publishing, 2013.

Mangham, Andrew, and Greta Depledge, eds. The Female Body in Medicine and Literature. Liverpool: Liverpool University Press, 2011.

Mukherjee, Projit, Nationalizing the Body: The Medical Market, Print and Daktari Medicine. London: Anthem Press, 2011.

Olson, Randy. Houston, We Have a Narrative: Why Science Needs Story. Chicago: The University of Chicago Press, 2015.

Peterkin, Allan, and Pamela Brett-Maclean, eds., Keeping Reflection Fresh: A Practical Guide for Clinical Educators. Kent Ohio: Kent State University Press, 2016, 225-228.

Porter, Roy. The Patient’s View: Doing Medical History from Below. Theory and Society 14 (1985): 175–98.

Risse, Guenter B., and John Harley Warner. Reconstructing Clinical Activities: Patient Records in Medical History. Social History of Medicine 5 (1992): 183–205.

Sparks, Tabitha. The Doctor in the Victorian Novel: Family Practices. Ashgate, 2009.

Spencer, Adam, Todd Young, Sarah Williams, et al. Survey on Aboriginal issues within Canadian medical programmes. Medical Education 39.11 (2005): 1101-9.

Wear, Delese. On white coats and professional development: The formal and the hidden curricula. Annals of Internal Medicine 129.9 (1998):734-37.

 

France et en français

Artigas-Menant, Geneviève. De l'idée de bonheur au concept de qualité de la vie. Archives Internationales d'Histoire des Sciences 64.172-3 (2014): 115-19.

Comiti, V.P. Historiographie de la bioethique. International Journal of Bioethics 21.2 (2010): 15-24.

Dorlin, Elsa. La matrice de la race: généalogie sexuelle et coloniale de la nation française. Paris: Découverte, 2009.

Fagot-Largeault, A. La déclaration d’Helsinki révisée. In D. Dreyfuss, et al. eds. Droit à la connaissance, respect des personnes et recherche clinique. Paris: Flammarion, 2001, 15–22.

Gaudillière, J.P. Inventer la biomédecine. La France, l’Amérique et la production des savoirs du vivant (1945-1965). Paris: La Découverte, 2002.

Haute Autorité de Santé. Démarche centrée sur le patient: information, conseil, éducation thérapeutique, suivi. Saint-Denis La Plaine: HAS, 2015. 

Jackson, Julian. Living in Arcadia: Homosexuality, Politics, and Morality in France from the Liberation to AIDS. Chicago; London: University of Chicago Press, 2009.

Lambrichs, Louise L.  La littérature est-elle thérapeutique ?  Les Tribunes de la santé, 23.2  (2009): 43-50.

Léchopier, Nicolas. L’émergence de normes pour la recherche biomédicale: À l’origine de la loi Huriet (1975-1988) Médecine /Sciences 20.3 (2004): 377-381. https://doi.org/10.1051/medsci/2004203377.

Louryan, S. Les "races humaines": histoire d'une illusion dangereuse. Revue Médicale de Bruxelles 35.3 (2014): 179-83.

McCaffrey, Enda, and Áine Larkin, eds. The Critical French Medical Humanities. Essays in French Literature and Culture. Crawley: University of Western Australia, School of Humanities. Numéro special 58 (2021).

Nahum, Henri. La médecine française et les Juifs, 1930-1945. Paris: L'Harmattan, 2006.

Peiretti-Courtis, Delphine. Corps noirs et médecins blancs: la fabrique du préjugé racial, XIXe-XXe siècles. Paris: La Découverte, 2021.

Sebai, Jihane, et Fatima Yatim. Approche centrée sur le patient et nouvelle gestion publique: confluence et paradoxe. Santé Publique 30. 4 (2018): 517-26.

Thalmann, Rita, Yves Ternon, et Georges Bensoussan, Classer, penser, exclure: de l'eugénisme à l'hygiène raciale. Paris: Centre de documentation juive contemporaine, 2005.

Weiner, Dora B. Les handicapés et la Révolution française: aspects de médecine sociale. Amsterdam: B.M. Israhel, 1977.